I learned something important today. This coming Wednesday–February 28, 2018–is World Rare Disease Day.
I wouldn’t have known this had I not walked through Mission Beach’s Belmont Park and met some smiling volunteers. They are working to raise awareness about rare diseases. They had a table set up near the carousel and told me a little about this often overlooked problem.
Rare diseases are usually caused by faulty genes, and about half of the people affected by rare diseases are children. Almost a third of these children will not live to see their fifth birthday.
Sadly, about half of all rare diseases do not have a specific foundation supporting or researching the condition. As you can see, it’s critical for many kids that we spread the word and provide support for those who are sick, and fund research in the search for effective treatments.
Please click my photo of the information chart, and it will enlarge so you can read it. Feel free to share any of these images.
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