Help save a young boy’s life!

The kiddo in the above photo is named Paxton. He desperately needs your help!

I learned from his dad that Paxton has a very rare genetic mutation. He has a devastating neurodegenerative mutation on the CLCN6 gene. Paxton will be part of a clinical trial for a promising new lifesaving treatment, but funds need to be raised.

Scientists at UMass Worcester, Chan School of Medicine, Horae Gene Therapy Center, are developing a first of its kind gene therapy for CLCN6 mutations. Paxton will be the patient in the clinical trial.

To read Paxton’s story, click here.

You can help!

I learned from Paxton’s father during the Adams Avenue Street Fair that funds can be raised via GoFundMe and WeWard. Also, you can donate via VENMO (@Cure_CLCN6_Inc) or ZELLE (Cure CLCN6, Inc.).

Here’s the GoFundMe page.

You can easily raise funds simply by walking and using the WeWard App. Create your profile (using referral code ZealousBumblebee1136), then from the Social Tab click Communities then +Join. Enter Code CURE2360 to join the Cure CLCN6 Community.

Please visit the Cure CLCN6 website.

Please spread the word.

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